Shared Decision Making
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Shared Decision Making (SDM)

Impact of SDM on patients, and determining opportunities to improve SDM

MS-SUPPORT Randomized Controlled Study

This study aims to validate the shared decision-making tool, MS-SUPPORT, in a sample of US adults with relapsing forms of MS and their HCPs. The study will assess: DMT utilization, patient-provider communication, DMT adherence, quality of decision making, quality of care, quality of life, decision conflict, and perception of illness

Partner: Col, Shared Decision Making Resources

Status: Complete

MS-SUPPORT Randomized Controlled Study Description MS-SUPPORT Randomized Controlled Study Description
MS-SUPPORT Randomized Controlled Study Description
MS-SUPPORT Randomized Controlled Study Description
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Poster presented at CMSC 2021 Poster presented at CMSC 2021
Poster presented at CMSC 2021
Poster presented at CMSC 2021
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Poster presented at CMSC 2022 Poster presented at CMSC 2022
Poster presented at CMSC 2022
Poster presented at CMSC 2022
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Col NF, Solomon AJ, Alvarez E, et al. Implementing shared decision-making for multiple sclerosis: The MS-SUPPORT Tool. Mult Scler Relat Disord. 2023;80. doi:10.1016/j.msard.2023.105092

 

Outcomes Study

This study is a multi-center observational real-world platform which aims to integrate data from multiple sources to facilitate patient and provider engagement, shared decision making, and participation in high-priority research questions, as well as identify a core set of patient reported outcomes (PROs) that correlates with disease progression and activity

Partner: Tornatore, MedStar Georgetown; English, MS Center of Atlanta

Status: Ongoing

Outcomes Study Description Outcomes Study Description
Outcomes Study Description
Outcomes Study Description
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Outcomes Study Infographic Outcomes Study Infographic
Outcomes Study Infographic
Outcomes Study Infographic
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Poster presented at AAN 2023 Poster presented at AAN 2023
Poster presented at AAN 2023
Poster presented at AAN 2023
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Poster presented at ECTRIMS 2023 Poster presented at ECTRIMS 2023
Poster presented at ECTRIMS 2023
Poster presented at ECTRIMS 2023
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Truven Treatment in MS Analysis

Evaluate disease progression and health resource utilization (HRU) in people with MS (PwMS) treated with a disease modifying treatment (DMT): adherent users versus non-adherent users over 6 years

Partner: Amezcua, USC; Williams, Joi Wellness

Status: Complete

Poster presented at CMSC 2020 Poster presented at CMSC 2020
Poster presented at CMSC 2020
Poster presented at CMSC 2020
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Amezcua L, Livingston T, Hayward B, Zhou J, Williams MJ. Impact of adherence to disease modifying therapies on long-term clinical and economic outcomes in multiple sclerosis: A claims analysis of real-world data. Mult Scler Relat Disord. 2023;77. doi:10.1016/j.msard.2023.104866
 

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