About MS-Link™
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About MS-LINK™

We know that good multiple sclerosis (MS) science is inseparable from good healthcare, and we are committed to being a champion for the advancement of both.

Our mission

We work together to:

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Integrate diverse views from the brightest minds in our community
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Develop sustainable and scalable research platforms
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Advance the research and development of tools for clinical care
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Ensure evidence represents the experience of those living with MS
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Foster teamwork and partnership through shaping shared goals
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Help herald the future of MS care: Right Patient, Right Care

Our history

In 2018, EMD Serono brought the multiple sclerosis (MS) community together to launch a collaborative research network in order to help to create a sustainable transformation of MS care. Interdisciplinary stakeholders formed a top tier scientific research network with two arms representing precision science and real-world data/patient reported outcomes. Recognizing that leadership is only as good as its counsel, MS-LINK founded a steering committee to act in an advisory capacity.

Terrie

The real-world evidence and patient-reported outcomes network (RPN) is led within EMD Serono by Terrie Livingston, PharmD, Head, Patient & Payer Solutions. Terrie will collaborate with leaders in MS science to generate and analyze large-scale, longitudinal data, and tackle clinical questions directly impacting MS patients' daily lives. The ultimate aim is to help physicians, caregivers and other stakeholders to bring patient-centered solutions to the forefront of care.

 

Stephen

The scientific and precision medicine network (SPMN) is led within EMD Serono by Stefan Lanker, PhD, Senior Medical Director, Patient & Payer Solutions. Stefan will work with top-tier scientists to conduct innovative research that focuses on patient needs by delving into questions that consider individual variability in genes, environment, and lifestyle.

Steering Committee

The MS-LINKTM Steering Committee members work together to identify and prioritize research topics aimed at improving the lives of MS patients through innovative and patient centric collaborative research with the MS community. 

 STEERING COMMITTEE MEMBER    AFFILIATION 
LILYANA AMEZCUA, MD  University of Southern California
AMIT BAR-OR, MD  University of Pennsylvania
SERGIO BARANZINI, PHD   University of California, San Francisco
BRUCE F. BEBO, PHD  National MS Society
GARY CUTTER, PHD  University of Alabama
PHILIP L. DE JAGER, MD, PHD  Columbia University
JEFFREY ENGLISH, MD  MS Center of Atlanta
LEORAH FREEMAN, MD, PHD  University of Austin
JUNE HALPER, APN-C  Consortium of MS Centers
LE HUA, MD  Cleveland Clinic Lou Ruvo Center for Brain Health
ADAM KAPLIN, MD, PHD  John Hopkins
MAUREEN KENNEY  Patient Advocate
MARIA LOPES, MD, MS  Managed Care Consultant, MMDLOPES, LLC
AMANDA MONTAGUE,ED.M.  MS Association of America
JIWON OH, MD, PHD  University of Toronto
GABRIEL PARDO, MD  Oklahoma Medical Research Foundation
JESSICA S. THOMAS  Patient Advocate
CARLO TORNATORE, MD  Georgetown University Medical Center

  

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