Our mission
We work together to:
Our history
In 2018, EMD Serono brought the multiple sclerosis (MS) community together to launch a collaborative research network in order to help to create a sustainable transformation of MS care. Interdisciplinary stakeholders formed a top tier scientific research network with two arms representing precision science and real-world data/patient reported outcomes. Recognizing that leadership is only as good as its counsel, MS-LINK™ founded a steering committee to act in an advisory capacity.
The real-world evidence and patient-reported outcomes network (RPN) is led within EMD Serono by Terrie Livingston, PharmD, Head, Patient & Payer Solutions. Terrie will collaborate with leaders in MS science to generate and analyze large-scale, longitudinal data, and tackle clinical questions directly impacting MS patients' daily lives. The ultimate aim is to help physicians, caregivers, and other stakeholders to bring patient-centered solutions to the forefront of care.
The scientific and precision medicine network (SPMN) works with top-tier scientists to initiate innovative research that focuses on patient needs by delving into questions that consider individual variability in genes, environment, and lifestyle.
Steering Committee
The MS-LINKTM Steering Committee members work together to identify and prioritize research topics aimed at improving the lives of MS patients through innovative and patient centric collaborative research with the MS community.
| STEERING COMMITTEE MEMBER | AFFILIATION |
|---|---|
| LILYANA AMEZCUA, MD | University of Southern California |
| AMIT BAR-OR, MD | University of Pennsylvania |
| SERGIO BARANZINI, PHD | University of California, San Francisco |
| BRUCE F. BEBO, PHD | National MS Society |
| GARY CUTTER, PHD | University of Alabama |
| PHILIP L. DE JAGER, MD, PHD | Columbia University |
| JEFFREY ENGLISH, MD | MS Center of Atlanta |
| LEORAH FREEMAN, MD, PHD | University of Austin |
| JUNE HALPER, APN-C | Consortium of MS Centers |
| LE HUA, MD | Cleveland Clinic Lou Ruvo Center for Brain Health |
| ADAM KAPLIN, MD, PHD | Johns Hopkins |
| MAUREEN KENNEY | Patient Advocate |
| MARIA LOPES, MD, MS | Managed Care Consultant, MMDLOPES, LLC |
| AMANDA MONTAGUE,ED.M. | MS Association of America |
| JIWON OH, MD, PHD | University of Toronto |
| GABRIEL PARDO, MD | Oklahoma Medical Research Foundation |
| JESSICA S. THOMAS | Patient Advocate |
| CARLO TORNATORE, MD | Georgetown University Medical Center |