Patient Reported Outcomes (PROs)

Use of PROs to improve diagnosis, treatment, and care of patients with MS.

OUTCOMES STUDY NEXT GEN MS DISCOMS EXTENSION

Outcomes Study

This study is a multi-center observational real-world platform which aims to integrate data from multiple sources to facilitate patient and provider engagement, shared decision making, and participation in high-priority research questions, as well as identify a core set of patient reported outcomes (PROs) that correlates with disease progression and activity

Partner: Tornatore, MedStar Georgetown; English, MS Center of Atlanta

Status: Ongoing

Outcomes Study Description pdf (734.1 kB)

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Outcomes Study Infographic pdf (2.6 MB)

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Poster presented at AAN 2023 pdf (788.3 kB)

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Poster presented at ECTRIMS 2023 pdf (3.5 MB)

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Next Gen MS

This study will use PRO data collected in the MS-LINK Outcomes study in a feed-forward method to evaluate if PRO data can be practically utilized within real healthcare systems to improve quality of life or delay disability progression in adults living with MS

Partner: Oliver, Dartmouth

Status: Ongoing

Next Gen MS Study Description pdf (359.6 kB)

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Poster presented at CMSC 2023 pdf (2.7 MB)

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Poster presented at ECTRIMS 2023 pdf (27.5 MB)

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DISCOMS Extension

This study aims to provide data on the durability of disease inactivity, and potential risks, after discontinuing DMT(s) in MS

Partner: Cutter, University of Alabama; Corboy, University of Colorado

Status: Complete

DISCOMS Extension Study Description pdf (359.5 kB)

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Poster presented at ECTRIMS 2023 pdf (444.8 kB)

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